My Story so Far

I woke up one day in June 2016 feeling like I had an UTI (Urinary Tract Infection). I had pelvic pain and was urinating way more than usual. I left work early and headed for a walk in clinic. The GP did a dipstick test, said I had an infection and handed me a prescription for antibiotics. Sadly, she didn’t send that urine sample off so I will never know if I actually did have a UTI that day.

I deteriorated over the next couple of days. The pain was horrendous. I felt like I had an elephant sitting on my bladder whilst also kicking me between the legs. Naturally, I turned to Google for some answers and very quickly came across something called Interstitial Cystitis (IC). Call it intuition or madness but I knew right there and then, that’s what I had.

I was prescribed another course of antibiotics and my urine was sent away. No infection found. I dreaded hearing those words. I prayed that I would have an infection because then I wouldn’t have IC. My blood test was normal, another urine sample was normal, I was being told everything was normal but I was far from it. I couldn’t go to work and sat at home in pain, researching what I could to get better.

The pain eased and I went back to work. I ordered Prelief from Amazon and to my surprise, I felt better. A few tablets before every meal to take the acid away and I was almost back to my old self. I was still having intermittent pain every day but it was bearable and I was having lots of time with no pain at all. I was back at the gym and had a smile on my face.

On my first meeting with Dr E, my Urologist, he mentioned IC within five minutes of seeing me. He scheduled me for a cystoscopy with hydrodistention and told me “not to listen to all the horror stories” about how this procedure had made people worse. He assured me everything would be okay and I didn’t doubt him.

I had the cystoscopy on 1st August 2016. I woke up from the anesthetic in agony but I assured myself that was to be expected. 

Dr E came to see me and said “Everything went really well”. Thank God I thought, it’s not IC but he continued, “You have Interstitial Cystitis, it’s mild, you’ll be okay, I’ll see you in a month”. He gave me some pictures of my inflamed, bleeding bladder and left. I would have cried but I was too sedated. Why did he say it went really well when my worst nightmare had come true.


My symptoms have been a lot worse since the cystoscopy, something I was not prepared for. Should I have listened to the horror stories? Yes but hindsight is a wonderful thing.

So, the battle for better health begins and that’s where I start my blog posts. I hope you enjoy.

Emma x