Happy Anniversary

This time last year, I was waking up from my anaesthetic being told I had Interstitial Cystitis. It's one of those moments I'll never forget and the past twelve months have been a crazy journey of acceptance, hope, courage and strength.   I've spent the past year doing everything I can to get myself healthier. …

Return of the Chocolate Monster

I saw my Urologist (Dr E) yesterday so thought I would give you an update on where I am with my Interstitial Cystitis journey. It's been a rough few months. I still haven't recovered from my cystoscopy with hydrodistention and my symptoms are much worse than before the procedure. Whatever my Urologist did that day, …

A Day in the Life of a Bladder Instillation

So last week, I had my first Hyacyst bladder instillation. I didn't ask many questions so I didn't know what to expect. I obviously consulted Google and came across a few horror stories. I was left in shock after reading about a nurse who inserted the solution into an unsuspecting woman's vagina instead of her …