R.E.M.I.S.S.I.O.N

Firstly, I apologise for not having a definitive answer as to why I’m in remission. I really wish it was that simple! I don’t understand why I’ve been blessed with the magic R but here are four things I think have helped…

Early Diagnosis
My GP knew about lnterstitial Cystitis and I was referred to an Urologist very quickly. My diagnosis took two months from the onset of symptoms. I know a majority of people are not this lucky.

Bladder Instillations
I had twelve Hyacyst bladder instillations, ending in May 2016. I went through every emotion with them; anger they weren’t working, crying through the pain and humour as my awkwardly angled urethra would cause problems with the catheter. Finally, I felt overwhelming happiness as I knew they had worked! Number twelve was like smothering aloe vera on severe sunburn, the type I know only too well with my transparent skin. I will never forget that amazing feeling and the joy it gave me after months of suffering.

Image result for legs spread funny animal

#selfie

IC Diet
I went strict with the IC diet for 7 months. I cut everything out that might irritate my bladder and lived a fairly miserably existence. I can’t say either way if the diet helped and to be honest, if I could turn back time, I wouldn’t take things to the extreme I did. I’m an advocate of cutting out the major bladder offenders such as acidic foods, spicy foods, caffeine, alcohol etc but please be careful if you cut out a substantial number of food groups. A very restrictive diet is not physically or mentally healthy. At the time, I would have done anything to stop the pain but extreme restrictions to your diet can present other problems to deal with. Please seek proper guidance from a doctor or nutritionist.

Nortriptyline
I started this in January 2016 and still take 10mg a day. Can’t say for certain it helps but with little side effects, I’m happy to continue taking it.

A lot of remission stories I’ve read have been based around eating a raw food, gluten free, dairy free, sugar free, fun free diet for all of eternity. Whilst that might work for some, I am proof it’s not the only way remission can happen. I have hardly any diet restrictions now and regularly overindulge in everything I once denied myself. The only thing I refuse to introduce again is caffeine (even though it’s tempting).

My next blog post will be centred around a popular question I’m asked; What does remission mean for me? Here’s a little taster…it doesn’t mean I’m 100% symptom free.

Don’t ever stop dreaming of a healthier bladder.
I am proof that dreams most definitely come true.

Emma x

 

6 thoughts on “R.E.M.I.S.S.I.O.N

  1. MichelleinScotland says:

    Thank you for posting. I look forward to reading your next post. I agree, remission does not mean symptom free – it is amazing what we will accept as ‘normal’.

    Like

  2. Amy says:

    I’m so happy to have found your blog. 6 months ago I was diagnosed with IC and it has been hell for me. Your blog makes me feel like I’m not alone and gives me hope that one day I’ll be in remission. Thank you for sharing

    Like

  3. Mazoli - Blog Author says:

    Wow, remission!! Congrats. I was diagnosed in 1995. I have struggled for years. I have a great support system which helps a lot. In my blog, I share my years of experience with this horrible disease. I also find writing about it gives me some feeling of control (not sure why) and comfort. Please visit and share your success. All IC patients dream of remission!!

    Like

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